Tuesday, May 29, 2012

The Miracle

It is a little over one week since we left the Mayo Clinic.  We are settling in to a new routine of sorts.  I am still overwhelmed by all God has done.  All of you reading this blog are part of the miracle God has done with Brooke.

Remember back in July 2011 when I wrote about the alarm going off on her tracheotomy machine? And how when we took off the oxygen hose attached to her trach that clear water came gushing out?  That was the first miracle from the Lord.  No one had ever seen anything like this happen - no nurse, no doctor, no respiratory technician. No one could explain to us what had happened.  But we saw it - clear water.  I called it the "living water", but the miracle of it all escaped me until this evening.  That was God preparing us for this miracle.

On May 11, 2012 while sitting in the cardiologist office at the Mayo Clinic, we were given some wonderful news.  All the tests they did showed that Brooke did not have any signs of severe pulmonary hypertension; the pressure levels in her lungs were normal (like you and me) and there was no sign of any leakage in her heart.  Her heart looked good.  She did not need any medicine nor a heart lung transplant.  Please remember we were just told in Hawaii that she had all of the above and there was nothing more they could do for her - thus the trip to the Mayo Clinic.  The doctors in Hawaii did not misdiagnose her.  The tests they did do not lie.  They are very competent doctors and we trust them.  But we also know that what we were being told was "impossible".  The doctors at the Mayo Clinic had all the reports and pictures, and film of all the angiograms.  When I asked him what happened, he said "he didn't know". I asked had this happened before?  He had never seen this before.  We sat in silence - Tex & Brooke started crying, I was at a loss for words (funny huh? Me at a loss for words).

God heard our prayers.  HE heard our cries and HE stepped in and healed her.  There is no other explanation.  Isn't it wonderful!?  You all are a part of this healing because you have faithfully prayed for Brooke.  God used all of us.  HE allowed each of us to be a part of this present day miracle.  HE doesn't want us to forget this, HE wants this to change our lives as we face other trials.  HE wants us to tell the world that HE is to be glorified through this healing.  It isn't about Brooke or us, it's about HIM.

I recall 30 years ago, kneeling in my bedroom at Sunset Beach and crying to God that He would heal Brooke.  She was so ill , had just had open heart surgery and now was diagnosed with juvenile rheumatoid arthritis.  I remember so vividly sobbing and asking Him to heal her and I remember how a peace flooded over me that to this day I cannot explain that feeling.  I heard Him say He was going to take care of her.   I also remember a little over 15 years ago Pastor Dan was visiting from India.  He began praying over each person at a Bible Study we were attending.  He touched Tex and said, "some day there will be a healing in your family".  I share with you these two memorable moments because when I heard those words from the doctor that she no longer had severe pulmonary hypertension , God brought those two moments to my mind.  HE was reminding me that HE was in control of all of this.
The timing was HIS not mine.

I can barely type this as my body begins to tremble when I recall God touched Brooke and HE has allowed all of us to see His power and feel His mercy.

Please remember to thank Him for being who He says He is. "I am the Lord, the God of all mankind. Is anything too hard for me?" Jeremiah 32:27

Wednesday, May 16, 2012

The latest on our Journey After seeing a cardiologist, pulmonologist, catherization doctors, and numerous X-rays, today we saw a physical medicine doctor. We also met a young girl from kaimuki, Kelly Nakamura, who is graduating from Mayo medical school this weekend and heading to John Hopkins medical center for her residency. THis afternoon we see a rheumatologist. The physical medicine doctor is ordering all kinds of tests and consults so we will be here another week. As much as we want to be home, we know we must make the most of our time here. So we are hunkering down for another week sharing the same room which makes for interesting conversation! We have been getting along being together 24/7 but this coming week will be the real test. Sitting with the physical medicine doctor and hearing for the first time all the things she saw through the X-rays anD all her concerns about the stability in Brooke's neck was unsettling BUT we are trusting in our Lord for peace and direction. The is so much to share here but I will wait till we get back home to share in more depth. We met David in the physical medicine department who is from Sudan and is one of the lost boys. We gave him a He>i sticker. Such a pleasant grateful young man. Would love to sit and talk with him more. Hope God affords us an opportunity. So prayer requests would be - good news from all the therapists, doctors, etc. looking at Brooke over the next week. Also, direction and clarity in all our decision making, Peace and harmony. Love, Sharon

Wednesday, May 9, 2012

The Journey Continues & I Miss My Best Friend Our first day at Mayo went really well. All appointments were on time,everyone was nice. It is unbelievable how organized they are with the amount of people they are seeing. The weather is very cool 50s and 60s with blue skies. The people who live here are soooo happy that the weather is beautiful. Of course Brooke and I are freezing. Wish I had my uggs. Tomorrow will be one more test and the consult with the doctor. Now about my best friend. I miss him so much. I decided to leave behind my thick bible and go electronic - ugh! I have taken him everywhere. I have wonderful notes and dates. I can find scripture quickly. I miss him. I don't care what anyone says going electronically isn't the same. I feel disconnected. I gave my bible to my son Trey because told me so. Join me in praying that he will open it and see how many times his name is in it. I wonder what God will do with my precious bible? Stay tuned for more of the journey.

Monday, May 7, 2012

The Journey

Today we are on a journey.  We are taking Brooke to the Mayo Clinic to see if they have any treatments that will prolong her days with us and make them better.  I will try to update on this blog site from my Ipad, but you know technology.  When they sell you the stuff they say it can do all these wonderful things, then you're alone with the little critter and it doesn't do what they said it would!

Pray for us.  It will take two plane rides and a 2 hour car ride to get to our destination.  We are excited to see what God does as He's taking us on this journey.  Join us through prayers, thoughts and hopefully through this posting.

love, sharon

Friday, March 16, 2012

Boldness

Everyone has been asking when am I going to post another blog. Well I finally have something worth sharing.

On February 10th I went into the hospital once again to have ONE stent put in my heart.  During the procedure the doctor noted that there were two other blockages that needed stents now.  While he was putting in the last stent, some placque was dislodged and I suffered a heart attack.  I am extremely grateful to the Lord that HE did not allow me to see, hear or feel any of this.  Usually the medicine they give you for "twilight" sleep allows you to hear them talking to you.  Any way they worked fast and pumped some type of medicine through my heart to get it going again.  After the procedure the doctor shared all this with Tex.  Tex said the hospital personnel in the procedure room including the doctor walked out of the room with "grave" looks on their face.   They decided that I needed to be put in ICU that night and hopefully go home the next day if all went well.

A few days later while in the cardiologist office, my doctor related to me that they had NEVER had anyone have a heart attack during the procedure and recover 100% as well as I did.  Again, I praise God for getting me through this.  At first it didn't sink in to me.  He was holding my hand while telling me what had happened to me.  The night before I had been asking the Lord if there was anyone that I had been coming in contact with that needed to have me share the good news with them.  So what do I blurt out to my doctor right after he tells me I survived another heart attack?  "Do you go to church?"  He said not, but kept holding my hand.  I then say "no wonder God has me coming back to you".  I then proceeded to tell him all Jesus had for him .  That God holds him in the palm of his hand, that God has gifted him with much talent and that HE wants him to know it came from Him and that HE wants him to use his gifts for Him.  God wants him to get to know him, that he loves him and that he was created in his image.  That's all I shared.  I didn't tell him the full gospel - this was all God wanted me to share.  I was floored that God was using me and extremely nervous!  My doctor thanked me for sharing and then left the room.  Is that it God?  My mind raced with all kinds of thoughts - what an idiot, I didn't ask him if he wanted to receive Christ, he must think I've lost my mind, what now?

A few days later I was sitting around - I do alot of that lately - asking God what is the trial for?  How do you want me to use this?  What can I learn?  What do you want me to do with all this time I have right now to just stay home?  What, what , what?????  And as faithful as God always is, eventho I was asking why and what, He still spoke to me, a woman who needed a touch from her Savior.  He took me to His Word.  2Corinthians 3  where Paul is speaking of how we are ministers of a New Covenant.  That our confidence is knowing that Christ lives in us, we are not adequate to do what He calls us to do but we have this hope in Christ.  Then, there in verse 12 was God speaking to me..."Therefore having such a HOPE, we use great boldness in our speech".....  that was God telling me how to use this trial.  When He tells me to be bold - do it - you don't have to be eloquent - He will give me the words - I just need to have BOLDNESS!!  Yikes!

Do you need to be bold for Christ?  When He tells you to share His love with someone do you automatically respond....first time obedience?  Or do you many times, like me, think "no way".  When He tells you to stand for righteousness do you speak with boldness?  I want to encourage all of you who read this, to remember that we have HOPE to go through trials, disappointments, rejections and life itself because Christ is our HOPE.

Today as I read 1Co.3:12 again I thought, Christ is asking me to be bold in my speech.  After all He has done for me can I do anything less than boldness?

I love each and everyone of you!

Sunday, January 15, 2012

Lemonade????

Just when we were cruising along in life, adjusting to the changes with Brooke a bombshell hit.  On wednesday, 1/11, I went to the ER and found out, that I had three substantial blockages in my heart!  Never, never, never did I suspect my heart was the problem.  My cholesterol was in normal ranges but something caused these blockages.  One blockage was 100% which was in the main artery - one of the worst scenarios.  Other two blockages were 60 & 70 %.

As I lay in that hospital weighing options, the only thing I could think of was all the things we have put off doing together.  Nothing else came to mind.  I just thought my husband and I were waiting to do this or that, take care of this or that, enjoy our time together - no one else mattered.  Yes, my children came to mind and I thought of how empty their lives would be without me but mainly it was my soul-mate.

After two nights at Pali Momi Hospital they sent me via ambulance to Straub to have Open ByPass surgery.  Wow, did that scare me.  I don't care how good a doctor is, what the success rate is, how you will be completely out, other peoples success stories are told you; you still fear the unknown for you.
The surgeon talked about putting a stent in my heart to open the arteries.  It may work , it may not.  But the procedure is less invasive, recovery time is quicker and if need be-they can still do the open heart surgery.  We opted for the stent procedure.  So at around 8:30 p.m. on friday the 13th, I went into the surgery room and what I thought was moments later, awoke in my hospital room.  There wasn't much pain except for the crink in my neck from sleeping so soundly.  Tex was asleep by my side.

There is much medicine to take now - all those pills you hear about on tv, pavlix, lipotor, etc blood clot prevention medicine, etc.  I feel like a walking pharmacy. And, there is that dark cloud always looming around me "will this work or not".  It is fear, and as much as I try to put it behind me, no one can possibly expect me not to have some.

As I write this, Tex is laying next to me watching football.  It is a pleasant time, I would hate to leave him on this earth, I would hate to leave Brooke and Trey, but it is out of my hands.  I can hear a little voice saying "when given lemons, make lemonade" - wish it were that simple.

Bear with me during this trial...I know God is faithful, He holds me in the palm of His hand, He is in charge BUT I am a real flesh and blood woman and it will take me a while to make "lemonade" out of all this.

Right now, I'm home, in my own bed, being able to take as many showers as I like, looking over Waimea Valley and enjoying the beautiful view and most importantly I have my children and my husband right here.

Wednesday, December 21, 2011

Reflecting

We (Tex, Brooke & I) tried to get our Christmas shopping done, however, we weren't successful.  But I didn't really care.  We were together and I enjoyed every minute of it.  As we were waiting outside of the motorcycle shop for Tex, I turned around and just stared at Brooke as she munched on a Kilani Bakery brownie.  Precious moments.  Some times in the rush of trying to get it all done, we miss out on the simple things - people.  So the cookies aren't all baked, the decorating is partly done, the rest I put away, the lights on the outside of the house never got put up and the gifts I intended to get didn't quite make it under the tree but...God has given us another Christmas together and that's all that counts!

2011 has been a year of triumphs and tears but this Christmas we are rejoicing that we can sit together, hug together and sing those carols together.

When I reflect back on 2011, I see how God was turning us down this path, blocking our way here, and shining a light down another way.  HE brought friends from the mainland to visit and love on Brooke.  Trish and Julie you both came at specific times when we really needed your friendship.  How awesome is our God to have allowed both of you to come at different times and bless us so much.   God allowed our good friend Leslie to stay a few more months (through some of our roughest months) in Hawaii before having to move back to Texas.  She loved on us, prayed and cried with me.  Another angel God allowed into our lives at just the right moment.  We got to take Brooke to Portland in Sept and see Hanson in concert and while there we got to visit with old friends Gary & Bella, and the Agnors!  Those visits were so special to us.  Those coffee dates where we chatted with Gary & Bella and how we were able to be with Bella as she was at one of her doctor appointments.  The Agnors opened their home to us for a fun night and Tex & Dave got to go to Cabela's and have guy time.  Breanna, Brooke and I got to traverse around Portland for shopping.  Special, special times.

Can't forget those hospital stays.  Although we don't want a repeat performance in 2012, we met some wonderful doctors, nurses, therapists,& technicians.  They added hope to our lives, and to those that were "cranky" - well God showed us how to love on them!  We got to compare what different hospitals had to offer.  Queen's had the better sleeping arrangements for us parents - Pali Momi needs work on that area, BUT Pali Momi had valet parking for only $4 for all day- Queen's was $15!!  We liked Pali Momi best eventho we had to sleep in Brooke's wheelchair - which makes for an achey body.  Pali Momi had Pearlridge Shopping Center next door which gave us different eating options.  No matter how good the food in a  hospital cafeteria may be, after a few meals there you long for something different. We realized as hospital personnel came in and out of our lives that the hospitals are a BIG mission field. We are thankful for all friends who came to the hospital for visits, brought food and listened as I lamented and cried.  Thank you to Mike and Maria who let us stay in their downstairs bedroom so we didn't have to drive to the North Shore so much.  All these angels were provided by our God who saw our needs.

Speaking of mission fields, God allowed us to take Brooke for two weeks to the Philippines.  It was our fourth visit and Brooke's second.  After being off the ventilator in July, we left in October for two weeks on Boracay and Panay.  What an awesome trip.  Brooke was a trooper.  She never complained once about being uncomfortable and stretched and our team could see God's awesome power first hand.  Our team was the best ever.  Everyone helped in so many areas, we never had to ask for help they all just stepped up to do whatever needed to be done.  They were committed and they knew that God had called each and everyone of us to Boracay.  Leilani & Frank left behind their son who had just found out he had pancreatic cancer, Randall & Marlene left their fathers who they care for in the loving hands of others, Kainoa who just turned 20 put his trust in a group of people he had never really traveled with, Sharon & Diane came along as single women waiting to see how God was going to use them, Gregg had to leave behind his company in the hands of others trusting God would take care of everything, Scott had made a commitment to Brooke the year before that if she went he would go - it took a year but he came along and God used him so much, Lyn & Derek left behind their new grandson but saw how God brought so many little children for them to love on, Gwen & Manny left Gwen's mom who was very ill because they too heard God say go.  And God brought Darwin & Connie from Calvary Chapel Pearl Harbor to join our team and what an asset they were!  God spoke and said "take Elizabeth to care for Brooke" and we obeyed and guess what?  In January Elizabeth will be a full time missionary to the church on Boracay!  God had to get her there so she would hear Him speak!  All that way, at every village, at every feeding, at every encounter with someone we saw God's hand guiding us, protecting us, providing for us.  Brooke grew, we all grew in our faith - 2011 Mission Trip to Boracay was a trip we will never forget.

God answered our prayers to bring our son Trey home to live for a while.  It is wonderful to see how Brooke lights up when he and she interact with each other.  Brother and sister - together.  Again, God's hand is on this.  We have been able to share the gospel with each of his friends that come through our gate.  God still uses us over and over again.

Tex is now home full-time - retired at last from the Fire Department.  I am enjoying our time together.  Brooke is ecstatic and feels so much more comfortable with his big arms around to lift her .  She doesn't always appreciate his teasing, but they do share the same sense of humor!

Thank you Lord, for providing so much at each step we took. You stretched us, even though we didn't always like the stretching, reflecting back we see that Your hand was guiding us each and every way.  You never let go.  Reflecting back reminds us who is really in charge and who sits on the throne!  Take the time to reflect back on 2011, bet you'll see God !